All your records will be excluded from any data sent to, or extracted by, NHS Digital.

Type 1 opt out (everything): This means that none of your data will leave the practice.

There are two types of ‘opt out’ available: This is reflected in GPDPR by the ability to ‘opt out’ of your data being used in particular ways. The Data Protection Act (1998) and the General Data Protection Regulation (2018) gives us (as “data subjects”) clear, enforceable rights around who uses the data, and how. You have the right to make choices about how your data is used. The lack of previous engagement has been heavily criticised. Patients have been made more aware of the scheme.Įngagement and communication are a vital part of building trust between patients and the public and NHS bodies who hold the data. This will mean that data won’t be sent out of the NHS Digital environment, and will allow more scrutiny and monitoring of what the data is used for.

A Trusted Research Environment (TRE) has been developed and implemented in NHS Digital for GPDPR data.Because these are individually processed by GP practices, which are also under current pressure related to the pandemic and vaccine rollout, a backlog has developed. The controversy that followed the announcement of GPDPR in May 2021 led to a rise in people registering Type-1 opt-outs.The backlog of opt-outs has been fully cleared, so that all opt-outs have been processed and no-one's data will be shared when they’ve opted out.The ability to delete data if patients choose to opt-out of sharing their GP data with NHS Digital, even if this is after their data has been uploaded.However, feedback from the public raised issues with consent and effective communication about what the programme means for patients, in particular around who would have access to the data.īecause of this feedback, the GPDPR programme has been put on hold until four conditions have been met: The GPDPR programme was originally planned to go live in September 2021, with data from GP surgeries starting to be extracted and held by NHS Digital.

How will access to my data be controlled?.Who can access my data if I agree to it being collected?.What happens if I later change my mind?.Will I be treated differently if I opt out of having my data shared?.We explain what GPDPR means for you, and what to do if you want to opt out or change your mind. Health data sharing: what you need to know about opting in and opting out

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